On May 1, 2013, our son Mac was officially diagnosed with multisystem Langerhans cell histiocytosis (LCH). At the time of diagnosis, Mac had rashes on his skin, enlarged lymph nodes in his neck, chest, and groin. He also had a skull lesion on his temporal lobe which would later be determined as a soft-tissue tumor. He would be turning one in just nine days. LCH occurs in any age group but most commonly appears in children. Occurence of LCH in newborns and infants under one year are said to be one in 1-2 million. At first we were relieved with this diagnosis but it only took a matter of hours before we realized how naive we were being. All this time, we had been praying that whatever was wreaking havoc on Mac’s body to not be cancer. Well, it’s not (technically). We were told “purist” don’t classify LCH as cancer, however, the medical community still remains somewhat divided on the issue. It is a disease that was thought to be cancer for many, many years. It acts like cancer–instead of one cell going rogue, it is several cells going rogue and attacks various body systems. And…it’s treated like cancer. Bottom line, our 11-month old son would be undergoing chemotherapy in a matter of hours. And here is where our roller coaster ride begins.