Contact Us!

macsafighter@gmail.com

Via Instagram:

  • #macsafighter
  • #teammachoward
  • #histiowarrior
  • #lchaintgotnuthinonthischamp
  • #lch
  • #lchawareness
  • #langerhanscellhistiocytosis
  • #ourfriendsandfamilyrock

Mailing Address: Team Mac Howard,162 Scott Circle, Hanscom AFB, MA 01731

4 thoughts on “Contact Us!

  1. I am Betty Hernández, I live in Caracas Venezuela, every day I pray for Max and you.

  2. Betty, thank you so much for your prayers. I have often said I would love to know how many people around this world are lifting sweet Mac up in prayer. Again, thank you ❤

  3. My daughters turning 2 on the 21. We celebrated yesterday with family and friends because on Monday she will be having surgery to install a broviac and begin her year of chemotherapy. Yeah it’s now 4:30am on Sunday and I’m Sherlock Holmesing the web about LCH…it’s what I’ve been doing since jan 21st when she was diagnosed. I’m concerned about….everything! Am I making the wrong choice about the broviac? …this is the first question I have for you..and I’m hoping you will contact me today because to be honest I’m so scared…and you have answers based on experience…like if I asked “what would you so if this was your child?” You would be honestly Answering me because my daughter is your child…added to the top of my list of prayers…teammac’s head coach contacts me…like yesterday! On those rare occasions when I get a free second to reflect I wonder how could time be moving so fast and so slow at the same time?

    • Gabrielle, first, thank you so much for reaching out. All of your feelings are very understandable. We are 10 months into our journey, have had to switch treatment plans, move, several procedures, etc. Trust me when I say you will constantly be questioning, researching, self-doubting, and all kinds of other feelings you did not know would be part of the package. I can only speak to our experience and it is by no means a “one-size-fits-all” approach. Mac started with a broviac but life with a port is SO MUCH EASIER!! We have another daughter who is only 15 months older than Mac and when he was not trying to pull at it, she was. If you don’t mind, please email me at macsafighter@gmail.com and we can “talk” in more detail there. You’re not alone in this fight–that, I promise you!! I look forward to hearing from you.

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